A number of organizations provide excellent online resources for information about organ donation and transplantation. Select your area of interest:
Organ donation information
Patient information
Healthcare professional resources
Organ donation information
Donate Life America
Donate Life America is a nonprofit alliance dedicated to educating the public about organ and tissue donation and creating a greater willingness to donate.
HelpHOPELive
HelpHOPELive provides consultation services to raise funds to bridge the gap between what health insurance will pay and what is actually needed to heal, live and thrive.
LifeLink Foundation
LifeLink Foundation is a nonprofit community service organization dedicated to the recovery of an increasing number of high-quality organs and tissues for transplant therapy. The Foundation attempts to work sensitively, diligently and compassionately with donor families to facilitate the donation of desperately needed organs and tissues for patients who are awaiting transplantation.
LifeNet Health
LifeNet is the largest full-service, nonprofit allograft tissue bank in the United States. This site provides information and helpful resources to donor families, recipients and healthcare professionals.
Living Bank
Living Bank is a nonprofit organ-donor education organization dedicated to the enhancement of organ and tissue donation and transplantation. Living Bank is dedicated to increasing the number of registered and informed donors by supporting and facilitating organ donation.
National Minority Organ Tissue Transplant Education Program (MOTTEP)
This national program aims to decrease the number and rate of ethnic minority Americans needing organ and tissue transplants. MOTTEP implements a national information and education campaign that emphasizes both prevention and intervention strategies.
organdonor.gov
This site, created by the US Health Resources and Services Administration and the US Department of Health and Human Services, provides information and resources on organ donation and transplant issues.
Transplant Recipients International Organization (TRIO)
TRIO is an international organization committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors. Through the TRIO headquarters and a network of local chapters, TRIO serves its members in the areas of awareness, support, education and advocacy.
United Network for Organ Sharing (UNOS)
This private, nonprofit membership organization administers the national Organ Procurement and Transplantation Network (OPTN) and the US Scientific Registry of Transplant Recipients under contracts with the US Department of Health and Human Services.
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Patient information
American Association of Kidney Patients (AAKP)
AAKP is a voluntary patient organization that has been dedicated to helping renal patients and their families deal with the physical, emotional and social impact of kidney disease for more than 30 years. The programs offered by AAKP inform and inspire patients and their families to better understand their condition, adjust more readily to their circumstances and assume more normal, productive lives in their communities.
American Kidney Fund (AKF)
AKF provides limited grants to needy dialysis and kidney transplant recipients and living kidney donors to help with the costs of transplantation, medicine and other treatment needs.
American Liver Foundation (ALF)
ALF is a nonprofit organization that promotes liver health and disease prevention. ALF provides research, education and advocacy for those affected by hepatitis and other liver-related diseases.
American Society of Transplantation (AST)
AST is dedicated to research, education, advocacy and patient education and care in transplantation. Their goal is to offer a forum for the dissemination of knowledge, scientific information and expertise in the field of transplantation.
Hepatitis Foundation International
This foundation is dedicated to education, awareness, prevention and research support in viral hepatitis for the public, patients, educators and medical professionals.
MyMedSchedule.com
A free web-based medication scheduler and reminder that provides you with printable charts to keep track of your medications, text or email reminders to take your medications on time and refill reminders so you don't run out of medication.
National Kidney Foundation (NKF)
NKF is a major voluntary health organization seeking to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases and increase the availability of all organs for transplantation.
Renalinfo
Renalinfo offers support and resources for people with kidney disease. It also offers personal insights from kidney patients and caregivers, as well as tips from healthcare professional guides.
Transplant Recipients International Organization (TRIO)
TRIO is an international organization committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors. Through the TRIO headquarters and a network of local chapters, TRIO serves its members in the areas of awareness, support, education and advocacy.
TransWeb: A Resource on Transplantation and Donation
TransWeb features news and events, real people's experiences, the top 10 myths about organ donation, a donation quiz, and a large collection of questions and answers, as well as a reference area with everything from articles to videos.
United Network for Organ Sharing (UNOS)
UNOS administers the Organ Procurement and Transplantation Network (OPTN), the national organ-sharing system established in 1984 by the US Congress. OPTN maintains the only nationwide patient waiting list and works to link all professionals involved in organ donation and transplantation.
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Healthcare professional resources
American Heart Association (AHA)
AHA is a national voluntary health agency dedicated to reducing disability and death from cardiovascular diseases and stroke.
American Society of Nephrology (ASN)
ASN provides a forum for the promulgation of research, and meets the professional and continuing-education needs of its members.
International Society for Heart & Lung Transplantation (ISHLT)
ISHLT, a not-for-profit organization, is dedicated to the advancement of the science and treatment of end-stage heart and lung diseases.
International Transplant Nurses Society (ITNS)
ITNS promotes excellence in transplant clinical nursing by providing educational and professional growth opportunities, interdisciplinary networking and collaborative activities, and transplant nursing research.
MedActionPlan.com
A web-based group that uses technology to help empower patients to be proactive in their healthcare. MedActionPlan.com provides web-based tools that allow healthcare providers to create, print and document personalized treatment plans for the patient, including specific action plans for adult organ transplant recipients.
MyMedSchedule.com
A component of MedActionPlan.com, here patients can find a free web-based medication scheduler and reminder that provides them with printable charts to keep track of medications, text or email reminders to take medications on time and refill reminders so they don't run out of their medication.
NATCO, The Organization for Transplant Professionals
NATCO supports, develops and advances the knowledge of its members and influences the effectiveness, quality and integrity of donation and transplantation. NATCO publishes a bimonthly newsletter, In Touch, as well as Progress in Transplantation, a journal for procurement and clinical transplant professionals.
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